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5 comments:
I watched and enjoyed this video, a great speaker. I listed carefully as I am on a lot of medication. I always worry about the mixing of medication, but I don't know what the answers are for someone with MS and seizures!!
Hi Debbie
Glad you enjoyed this video which Graham high-lighted.
We all have to take care with medication and of course like you many may need to take a mix to help with their illnesses.
MS, seizures and then I believe there are times of remission ... plus I think MS can affect people in different ways certainly does not make things easy, sorry understatement of the year!! I do not know enough about this disease, but I have heard of Dr Wahls who does, and which Eddie high-lighted in a post from 2015
"How I Went From Wheelchair To Walking By Changing My Diet: Dr. Terry Wahls
Dr. Terry Wahls was given a diagnosis of MS and told she'd have to spend the rest of her life in a wheelchair. After radically transforming her diet, her outlook, and her medical care, she is able to walk and ride a bicycle. Here's how she defied disease and what you can learn from her experience.
This is a great story of what can sometimes be achieved and why diet can be so important, often life changing."
See the post and video here
http://thelowcarbdiabetic.blogspot.co.uk/2015/08/how-i-went-from-wheelchair-to-walking.html
Hope this may also help.
Thank you for taking time to comment both here and on many other posts.
I always enjoy my visits to your blog seeing you and the hubs... and your lovely smiling faces - you remain so cheerful, and don't let the 'bump in the road' as you term it stop you from smiling and sharing things with your many blogging friends.
Enjoy the rest of your week - I will be over to visit your blog soon.
If other readers wish to, you can find it here
http://itsallaboutpurple-debbie.blogspot.co.uk/
All the best Jan
thank you for taking the time to leave such a detailed reply. i was in a wheelchair in 2006, for 6 months. i attribute the miracle of regaining the use of my legs to physical therapy and medication. also, my MS is remitting/relapsing and i believe the 6 months was a long relapse, not helped by steroids. i never changed my diet. please take no offense to the following statement but many people attribute their wellness to "changes "they" have made"...when it in fact it is relapse, followed by remission!! it is difficult with MS to tell the difference. i was also told i would never walk again and used the words to inspire me. but i believe wholeheartedly that those words may have turned out to be the truth. i have learned the hard way that you can't "will" things to be better. that you need more than a positive attitude to find wellness with MS....and that not everyone with this disease can be "Montell", i have heard that more times than i care to remember!!!
i can walk very short distances, i use a scooter for most of my outings but can ride a bike pretty well. go figure. i am so proud of the way i have lived this difficult life. i don't think i know anyone who would say i am handicapped, my friends just say i'm strong like a bull. my urologist said i am a warrior, i like that one best!!!!
many thanks!!!!
ps....the MS drug i was taking in 2006 was tysabri, i do not take that anymore because they determined i was at a very high risk of getting PML, but i still believe it gave me my legs back!!!
Hello again Debbie ... and many thanks for coming back to me with your detailed reply.
As I said I do not know enough about MS, but I did know that Dr Wahls had given a talk, which has been well received, hence the link I gave in my comment above.
I had to look up Montel Williams, as I hadn't heard of him ... I also see he has been talking to Jack Osborne about his MS diagnosis!
I also looked up PML and can understand why you stopped taking it - if readers wish to learn more about this then use this link http://www.clinicspeak.com/understanding-pml-risk-on-tysabri/
Whenever any of us have a diagnosis from MS to Cancer to Diabetes to Heart Disease (even to a common cold) I am sure that we consult with our GP's, our specialist and even 'Dr Google' but what we do, how we live our lifestyle has always to be a personal choice.
In the short time I have known you (and the hubs) from 'blogland' I have always admired your great spirit ... some may call it 'a bull' some may call it 'a warrior' I would call it a lovely person with a marvelous loving family support who just refuses not to enjoy life.
I know you don't drink but I am raising a glass of wine to you ...
Good wishes
All the best Jan
thanks again...it's always a pleasure, "speaking" with someone who really cares and getting a new perspective!!! have a great weekend and happy mothers day jan!!!
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